Family Life

'It turned our world upside down': Mum talks candidly about her twins' diagnosis

When Christine McGuinness and her husband Paddy were told that their four-year-old twins had autism, their world turned upside down.

Feeling a "huge sense of loss" following the news, Christine, who didn't have much understanding of the condition, says that she initially felt alone. 

 

Penelope’s first hair cut  For any child to get their hair cut it can be upsetting but for a child with autism it can be particularly distressing. A couple of weeks ago I shared a proud moment when my Leo had his hair cut happily for the first time. I knew it wouldn’t take long for my Penelope to follow (she often follows her twin brothers lead!) Penelope is very sensitive to noise, she spent the first couple of minutes covering her ears as the sound of the scissors was too much for her but once she realised it was ok, she sat with her hands together on her lap and smiled throughout. I am immensely proud, I can see my babies growing up and handling these moments that are just “normal” for most people but extra special for us. I just bloody love them  I’m so grateful my twins have each other and baby Felicity even though they’re not keen on her right now!  #TeamMcG #autism #autismawareness #ASD #Twins

A post shared by Christine McGuinness (@mrscmcguinness) on

And that is why she is trying to raise much-needed awareness of autism so that parents won't feel like they are on their own and that children are given a better chance in life. 

"When my husband and I were first told that our twins had autism it turned our world upside down," the mum admitted.

"I knew it was my purpose in life to be their mum, but this really made me want just want to be the best mum I could be for them."

Just like any mum, Christine has hopes and dreams for her children; things like making friends at school, building relationships, and even having their own families when they are older. 

"Most of all I just want them to be happy and I want them to live in a world that is more understanding about autism," she explains. 

"Just like anyone else, people on the spectrum have their own hopes, dreams and visions for their futures."

The autism campaigner was speaking at the launch of Autism Together's Future 50 appeal.

The charity plans to build the world’s first autism centre where pioneering biometric technology will be used to ‘see inside’ the bodies of people with autism who can’t communicate and explain their anxiety or distress to carers.

Biometric wristbands which look like Fitbits but are highly sensitive can track tiny physiological changes – such as heart rate, skin temperature and sweat – and predict oncoming meltdowns.

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